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Huntington's Disease Society of America
DescriptionLocation: alternates between the Fridley, Minnesota office and home
Assist with coordinating and implementing fundraising events for the Huntington's Disease Society of America Upper Midwest Region. Provide support for approximately 40 fundraising and outreach events that take place in the states of MN, IA, ND, SD and NE. With an emphasis on community engagement, the primary purpose of this position is to support fundraising efforts and recruit volunteer, community and corporate support to reach specific fundraising and program goals.
The Huntington's Disease Society of America (HDSA) is a national non-profit volunteer-based organization dedicated to improving the lives of those affected by Huntington's disease (HD), a catastrophic, degenerative brain disorder that devastates families for generations. As HD slowly diminishes one’s ability to think, eat, talk, walk and reason, they become entirely dependent upon others to complete the simplest of daily tasks. Eventually the weakened individual succumbs to death from pneumonia, heart failure or other complications. Symptoms typically appear in the prime of one’s life between 30 to 50 years old. After the onset of HD, the average life expectancy is only 10-20 years. Children who develop juvenile HD rarely live to adulthood. Currently there is no cure and only one treatment for a symptom of HD. Visit: www.hdsa.org/mn.
This position is UNPAID.
Provide support to the HDSA Regional Director of Development in the Fridley, MN office with the creation, coordination and execution of fundraising events and campaigns. Some projects may be completed from home. Work with media outlets and sponsors to publicize events and promote the HDSA mission.
Day to day duties may include but are not limited to:
Sponsor and Donor Support:
Research potential sponsors, companies, teams, donors, foundations, schools, clubs, community, etc.
Enter contact information into excel, create excel sheets
Make follow up calls if applicable
Assist with mailings
Solicit and follow up on auction donations
Organize auction items into packages
Create promotional materials for auction
Create marketing materials
Update HDSA websites
Recruit and coordinate volunteers
Communicate with volunteers on applicable events
Write press releases
Update facebook page and community event calendars
Assist with mailings and mail-merge
Create event binders